Online Medical Research Network Waltham Media Ltd
Over the last 12 months (starting July 2009) Waltham Media has been developing a new approach to medical research involving the public and patient sector. We have teamed up with The UK Endometriosis Survey to trial our first public launch of our research system. Like many charities, The UK Endometriosis Survey is focused on progressing research towards the understanding, early detection, prevention and ultimate cure for sufferers of endometriosis. Endometriosis is a female condition that has no known cause or effective treatment and is responsible for 50% of all infertility cases throughout the western continents.
Our medical research platform brings a variety of unique approaches to endometriosis research on behalf of the UK Endometriosis Survey. Whilst we are currently maintaining a level of confidentiality and disclosure regarding our research platform at this early stage, a summary of the benefits to The UK Endometriosis Survey are as follows:
- Endometriosis and their partners can engage directly into actual real clinical research into endometriosis
- Endometriosis sufferers and their partners will be able to access research tools with real-research-protocols for performing their own research.
- Endometriosis can share their own theories and hypotheses on both the cause and effective treatments of endometriosis with other sufferers and medical professionals for public scrutiny and challenges alongside actual research protocols.
- Endometriosis sufferers can contribute to the largest medical database of their personal (and anonymous) detailed medical records covering all aspects of their life for its research value.
- Endometriosis researchers can have direct access to our registered network of endometriosis sufferers to quickly obtain the research data they require, filtered to multiple and checkable variables.
- Endometriosis sufferers, medical professionals and researchers can have direct access to an an open source live survey with every piece of research data available publicly (but anonymized).
- The provision of a set of tools that close the communications’ and collaboration bridge between researchers and sufferers, regardless of medical understanding.
- A system that can analyze the profiles, backgrounds and medical histories of sufferers to automatically identify patterns and other trend similarities that can provide researchers with new leads and clues in the direction of research.
- To provide LIVE results of all data collected by the Medical Research Platform that can be extracted for integration with many third party research and data analysis packages.
- Integrate with the doctor and general practitioner register held by the General Medical Council. This allow sufferers to share detailed reviews and results of their treatment experiences of the doctors in the UK. This allows sufferers to locate the services or medical professional that can offer them the best treatment available to them (based on statistical evidence of other sufferers treatment results).
The research platform licensed to the UK Endometriosis Survey has been designed for speed and ease of use however at the moment the system is currently under testing and refinement so the end-creative is still a working progress.
The medical research platform has been designed and building by Waltham Media from the ground up. The system has been designed to run on Microsoft Server architecture using the ASP.NET 2.3 frameworks with a cost of custom web services exclusive and confidential to Waltham Media Ltd. The specific platform details will not be disclosed.
We are currently liaising with The UK Endometriosis Survey in the final stages of preparation before the official launch of the research network. Our pre-registrations of endometriosis sufferers over the last twelve months has now reached over 5,000 and we currently have a group of beta-testers including sufferers, medical professionals and researchers testing the system heavily. We expect a September 2010 launch. Although we are initially working with the UK Endometriosis Survey to trial our medical research system, we are currently planning commercial licensing of the system into other areas of medical research with a particular interest into chronic medical conditions where effective treatments are lacking and research budgets minimal.